One Moment with God

One Moment with God

When we were in Melbourne last month, I sat and wrote a blog about being pregnant and having a baby. I chose not to post it because, to be honest, it was pretty negative. I came to the point where I realised after writing the blog that, fear is so ugly, but focus is powerful.

Hope Trafficker Book

Last year I set the goal to finish writing my book, so here it is! I’m so excited to share this with the world. I never considered myself a writer, but after I started blogging and God put on my heart to write about my unexpected journey of deep pain and taught me that that hope can be found. Hope in us stirs hope in others. My prayer is that after you have read my book, you will be encouraged on your own journey, that you would carry hope and be a HOPE TRAFFICKER.

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One Moment with God

One Moment with God

When we were in Melbourne last month, I sat and wrote a blog about being pregnant and having a baby. I chose not to post it because, to be honest, it was pretty negative. I came to the point where I realised after writing the blog that, fear is so ugly, but focus is powerful.
Piper Starts School

Piper Starts School

I can’t believe we completed the first term of Kindy. The lead up to Piper starting school was really tough for me. I remember every time I thought about the possibility of Piper going to school, the fear took over my body and I felt physically sick. The thought of...

I Wrote a Book

I Wrote a Book

It’s still a foreign thought to me, that I actually wrote a book. I only told two people because I didn’t want to declare something, and like everything in my life, never stick at it for a long time.
R U OK?

R U OK?

I was reluctant to write this, but here I am being vulnerable, hoping it can encourage someone. It’s R U OKAY day and this is my story with mental illness.
Be Still

Be Still

When was the last time you actually sat in stillness? When you just sat in quiet, in God’s presence.
Who do you say you are?

Who do you say you are?

Lately, I have been having a bit of an identity crisis. I have been allowing how people see me, or think of me, or how I think they think of me, to define me. When you hear someone say something about you, do you think that is you? Like that is who you are?
Listen Up

Listen Up

While I don’t fully know what Piper hears without the hearing aid on, it has been described to us like being at a loud concert wearing head phones.
The Devil Loves Doubt

The Devil Loves Doubt

The last swallowing test we had for Piper we had been praying and believing for good results, we had people around us praying into this test. It had been over a year since her last one so we had been waiting a long time for this, for answers.

“So be strong and courageous, all you who put your hope in the Lord!”

– Psalms 31:24

Instagram post 2167280454868933175_20336831 What I love about my brother - he is generous, and kind, he’s loyal and loving. He has a huge heart, he’s caring and he is so loved. 💙
Instagram post 2154857028527132543_20336831 Just you, me and baby for the next 3 weeks! 🥴 #sendhelp #icandothis #31weeks
Instagram post 2143412532480324633_20336831 Trying to remember why I wrote this book, Grief seems to have hit another level this week. Piper’s desire and desperation to eat is more and more intense right now. The begging for us to eat, so she can have licks and the constant repetiveness of saying no, it sucks. 
There is a line i wrote in my book “Grief isn’t cancelled by time or distance but it is covered by hope”. Having hope in God doesn’t lead to disappointment but rather our unshakeable God is something we can cling on to. In the unknown and in the heaviness we can choose to keep hoping which will compel us to find joy in the messy, and in the painful and in the beautiful moments in between, like when Piper leans over, cuddles me and says “I love you Mummy”. Hope is real and sharing our hope and our story, stirs hope in others so that we can keep on hoping, one day at a time. ‭‭ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀ “Let joy be your continual feast. Make your life a prayer and in the midst of everything be always giving thanks, for this is God’s perfect plan for you in Christ Jesus.” 1 Thessalonians‬ ‭5:16-18‬
Instagram post 2129792215405120929_20336831 “I BRAVE” 🌻 yes you are my girl.

The last few hospital visits have been rather traumatic for Piper since her surgery 5 weeks ago. I spent the afternoon being sad in bed, because this journey is so painful some days for me, but now as P is older she’s aware it’s hard for her too and that’s tough. As i picked myself up to have a shower, I reminded myself as I bumped into a complete stranger this morning at the hospital who told me how she read my book, and is on her own journey with her twins, one with trisomy 21 and then I remembered in that moment I can choose to keep hoping. Hope is real. Hope in God. Hope tomorrow is a better day. 💗 #hopetrafficker #22q #pipersjourney
Instagram post 2123218455550228909_20336831 We love you daddee today and everyday. Happy Father’s Day! 💜
Instagram post 2120286798408908734_20336831 The best kind of surprise, all the way from England! Heart is full 😍💜
Instagram post 2119661375647997506_20336831 “Fear is so ugly, but focus is so powerful”. Wrote some words about being pregnant over on my blog. Link in bio. 🌻
Instagram post 2106537350726082541_20336831 This girl managed a whole day at school today, wouldn’t even know she had major mouth surgery 4 days ago. She’s amazing 😍
Instagram post 2104066341896760471_20336831 Piper had her sub-mucous cleft repaired yesterday. Hasn’t been the greatest recovery. We won’t know if it will be successful for a while until she re-learns her palate again. It’s been a pretty rough night, barely sleeping 20mins without choking on her saliva because she can’t feel it to swallow it. Asking to go home, This journey is absolutely heart wrenching but I’m so proud of her brave little spirit and constantly reminded myself throughout the night that’s God’s peace rules in our heart and not in our circumstance. I love you sweet P. 💗 #pipersjourney #22q
Instagram post 2101412568879727827_20336831 The most lacklustre gender reveal 🤣 P still doesn’t get it and was more interested in doing her eating 🙈💗💙
Instagram post 2089898894457551670_20336831 This pregnancy has been super hard for me, it’s a lot different this time around after what we have been through with Piper. I want so much more then just a healthy baby, I want a baby that can feed, I want a baby that can hear, I want a baby that I’ll never be in fear if they suddenly stop breathing, I want a baby i can take home, I want a baby that’s okay. But I’m remembering to remind myself and focus on these memories when P always says “I love you baby” and gives my tummy lots of cuddles and kisses and to keep trusting God with what lies ahead. #18weeks
Instagram post 2088449186581126023_20336831 What do you do when the Doctor doesn’t even know what to do or how to resolve the problem? You keeping trusting that God does even though it hurts and the journey is so painful. Moment by moment, day by day. 💔😥
Instagram post 2035444273601416147_20336831 I wrote a blog on Piper starting school. I am so proud of her. *link in bio* 😍
Instagram post 2014452223255062126_20336831 I love them so much. 😭😍 despite everything I am so thankful.

Leigh Edwards

Married at 19, I became a mum at 22 to our beautiful daughter Piper, diagnosed with 22q (22q11.2 deletion syndrome – 22q),  I was taken on an unexpected journey.

Born in England I moved to Mandurah, Western Australia when I was 12. I don’t consider myself a writer, but after I started blogging about my journey of deep pain I discovered  hope can be found, and hope in us stirs hope in others.

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