Dear Me

Dear Me

Dear 16-year-old self, Here you are, sixteen, care free, with no responsibilities and you love the party scene. That boy you just started dating. Well turns out, he will become your future husband. You’ve just been introduced to church because it turns out he is one...
The Weight of Worry

The Weight of Worry

I had this horrible experience last week. I was at a café with a friend and her daughter, they had a playground and when we arrived it was packed. So many children running in all different directions. Immediately, I was already feeling a little bit overwhelmed and...
What it means to tube feed my child

What it means to tube feed my child

Feeding Tube Awareness Week is February 6 – 10 so I thought I would write about my experience with tube feeding. I knew nothing about feeding tubes or that they ever existed until we had Piper. Did you know there are five types of feeding tubes; Nasogastric (NG)...
From where we started

From where we started

So in 4 weeks’ time our baby girl will be 2! Ahhhh. It’s been rough to say the least, but as I reflect from where we started and where we are now I know we have come so far. I must admit I never really go into detail with Piper’s stuff, mainly because people don’t...
Searching For the Positive

Searching For the Positive

But as for me, I will sing about your power. Each morning I will sing with joy about your unfailing love. For you have been my refuge, a place of safety when I am in distress. – Psalms 59:16 I never pictured I would ever go through anything like this. As Piper...
Piper’s Daddy

Piper’s Daddy

This man oozes strength and confidence. I’m forever thankful and grateful for this guy. I get to call him my husband, I get to love him, share our life together but most of all I get to call him Piper’s dad. The most important role in her life. I know he’s been...
Victory

Victory

Everyone that has followed our journey so far is already aware of the amazing progress we have made with Piper’s feeding. I am so proud of her and where we are at and I want to share it with you. I am in still in awe of God’s faithfulness and his miracle healing...
What it means to be a Special Needs Mum

What it means to be a Special Needs Mum

I remember every detail of the day we received Piper’s diagnosis. I remember what outfit I was wearing, the chair I was sitting in, I remember the expression on the doctors face as he delivered the news. I could see the disappointment that he had got it all...
Feeding Your Baby

Feeding Your Baby

This one’s going to be painful! As a first time mum I planned everything out. I decided I was going to breastfeed or at least try as hard as I can and if it doesn’t work then I will give her formula. I was okay with that. I was just going to give it a go. There is so...
The Best Parts of 22q

The Best Parts of 22q

I often feel really alone on my journey. My friends and family don’t quite understand. I know they hurt with me and understand parts of it, supporting and loving me unconditionally where they can, but never really getting the full picture. I think when you are...