Feeding Your Baby

Feeding Your Baby

This one’s going to be painful! As a first time mum I planned everything out. I decided I was going to breastfeed or at least try as hard as I can and if it doesn’t work then I will give her formula. I was okay with that. I was just going to give it a go. There is so...
The Best Parts of 22q

The Best Parts of 22q

I often feel really alone on my journey. My friends and family don’t quite understand. I know they hurt with me and understand parts of it, supporting and loving me unconditionally where they can, but never really getting the full picture. I think when you are...
Expectation vs. Reality

Expectation vs. Reality

When I fell pregnant I had an expectation of life being all sunshine and roses. Everything you hear and the photos you see tells you to expect a cute little bump, your boobs get bigger and you want to have sex all the time. You feel your baby kicking, you can eat for...
Being Brave

Being Brave

Fear. An unpleasant emotion caused by pain or danger. Trying to be brave enough to face the spider in the corner of the room, to squish it or even go close to it. The first day of high school or moving across the other side of the world at 12 with no friends. Facing...
I Hate the Word Normal

I Hate the Word Normal

I hate the word normal… I remember back to the day we walked into the NICU a gloomy feeling among the hospital. Sitting in the chair when the doctor came in to deliver the news that Piper’s test came back positive for DiGeorge syndrome (22q). What is it!?...
Piper’s Story

Piper’s Story

This is a speech I wrote and the first time I spoke publicly about our journey. I was asked my one of my old teachers to talk in front of 200 mcc students. Hi, today I am here to tell you about our story. My name is Leigh and I’m 23 years old. I graduated here from...